My Life With Epilepsy
Dear EpilepsyNYC Community, I am Kate Spratt. I am 28 years old, and I have epilepsy. When I was six years old, I had my first seizure: on Christmas Eve, I was looking at the twinkling lights on our...
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Epilepsy and Driving
Dear EpilepsyNYC Community, Because of my epilepsy, I have never driven a car. When I was around 17 years old, like many of my friends at that age, I was saving my allowance with the hopes of using the...
View ArticleEpilepsy and CARERS Act to Reschedule Cannabis Explained
What is the Compassionate Access and Research Expansion and Respect States (CARERS) Act to reschedule cannabis/ medical marijuana, and how does it relate to epilepsy? The Compassionate Access and...
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EFMNY Joins Senators Gillibrand & Booker in Support of CARERS Act
“It was such a privilege to gather with New York & New Jersey families in NYC in support of the #CARERSAct legislation sponsored by Senator Kirsten Gillibrand, Senator Cory Booker, and Senator Rand...
View ArticleMe and My Epilepsy – Mrs. Gotham City
My name is Alexandra DeBourcy and my epilepsy is a part of my life, my history and my future. I was diagnosed with epilepsy at the age of five, when my parents noticed I was having “head tics.”...
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Growing-Up With Epilepsy and Learning to Speak Out at School and in the...
Epilepsy is difficult to explain, describe and understand. People can only “see” epilepsy when someone is having a seizure. For many people with epilepsy, seizures are unpredictable and, sometimes,...
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My Epilepsy Story
I recall the day I had my first seizure very well. I was walking into the room where a school-wide mass was taking place when suddenly, as the music began, I became very anxious. Everything seemed to...
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Studio E for Teens NYC – Art Therapy
The Epilepsy Foundation of Metropolitan New York is excited to announce the first ever Epilepsy NYC Studio E Art Therapy for Teens! Made possible through the generous support of Lundbeck, Studio E...
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SUDEP Awareness Day 2015
What is SUDEP? Sudden Unexpected Death in Epilepsy (SUDEP) is said to occur when a person with epilepsy dies unexpectedly and was previously in their usual state of health. The death is not known to be...
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SUDEP Awareness – A Family’s Story
My brother, Jimmy, was diagnosed with epilepsy at 6 months old. He was never able to get his seizures under control, and the longest he ever went seizure free was for 6 months after he had frontal...
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Treating Infantile Spasms
Infantile spasms is a potentially devastating early-onset epilepsy that affects infants, typically between three and nine months of age. Many cases of infantile spasms occur in children who are already...
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Prognosis in Infantile Spasms – #EpilepsyNYC Infantile Spasms Awareness Week
Summary: – The overall intellectual and neurodevelopmental outcome in children with infantile spasms is generally poor – The long-term prognosis is directly related to the underlying cause of the...
View ArticleInfantile Spasms Awareness Week
Infantile Spasms (IS), also known as West Syndrome, is a rare form of age-specific epilepsy that usually presents itself in children within the first year of life. Early diagnosis and treatment of...
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I Can Spell Electroencephalogram (EEG)
Recently, my neurologist ordered an EEG test for my epilepsy. EEG stands for electroencephalogram. An EEG records the electrical activity in your brain and it helps doctors detect abnormal electrical...
View ArticlePreventing Breakthrough Seizures: You Can Do More Than You Think [Webinar]
A Disease-State Focused Webinar Presented by the Epilepsy Foundation of Metropolitan New York and Eisai Inc. [November 17, 2020]
View ArticleSeizure Clusters: Unmet Needs & Emerging Formulations [Webinar]
This webinar is presented by the Epilepsy Foundation of Metropolitan New York and sponsored by a non-commercial, unrestricted grant from Aquestive Therapeutics, Inc. [November 23, 2020]
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Distinguished EFMNY PAB Member Patricia McGoldrick to Receive 2021 ACNN Award...
The Epilepsy Foundation of Metropolitan New York is proud to recognize its Professional Advisory Board Member, Patricia McGoldrick, NP MPA MSN, who is the recipient of the 2021 Association of Child...
View ArticleSeizure Detection Using Wearable Devices: Current & Emerging Technologies...
This webinar is presented by the Epilepsy Foundation of Metropolitan New York and sponsored by a non-commercial, unrestricted grant from LivaNova, Inc. [October 7, 2021]
View ArticleBeyond Thriving: Epilepsy
In this week’s episode of #BeyondThriving our #thriverthursday producers Jade Anderson and Gabriel Kerr sit down with experts and thivers of epilepsy, including the parents of the late #CameronBoyce...
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NAYZILAM – Rescue Treatment in Schools
For indication on NAYZILAM and important safety information, please CLICK HERE.
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